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Kitchen Catastrophe
A few days ago I had a visit from my occupational therapist (OT) and a surveyor from my local Council. They’d come to discuss making my bathroom safer and more accessible. The surveyor was late and...
View ArticleFixed Stare
A couple of days ago I was waiting to pick up some medication in a busy hospital pharmacy. There was a boy aged about nine also waiting. I pulled up in my wheelchair and waited nearby. The boy couldn’t...
View ArticleWaiting Room Lows
This morning my support worker Ellie and I were in the waiting room at the specialist neurological hospital I go to. I was there to have a nerve conduction test, which turned out to be a pretty intense...
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Waiting Room Highs
At the end of last year I wrote about being laughed at and mimicked while in a hospital waiting room. Today at the same hospital I had a completely different and very lovely experience chatting to two...
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Don’t Touch My Chair
For wheelchair users one of the irritating and potentially distressing things that happens a lot is people touching your wheelchair without permission. I appreciate that this mostly occurs out of...
View Article‘Are You Sure You Want To Come In?’
Yesterday Joe and I travelled to north London to give a talk on inclusive practice to music educators from across the UK. We had a great morning and the talk seemed to go well. Afterwards we had half...
View ArticleAqqruuurrrrrr!
Having Tourettes means I’m sensitive to certain sounds. Some noises are uncomfortable for me to hear and make me overreact. There are others that I find really exciting, which make my tics go wild. One...
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Plastic Straw Good Practice
Plastic straws have been banned in the UK. This has been on the cards for months but the new legislation was announced only a few days ago. There’s a medical exemption for ill or disabled people who...
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Serena Bhandari - Flatmates: can’t live with them, can’t (afford to) live...
Time in lockdown is passing very quickly and that’s great news because it means it’s now time for another guest post from writer Serena Bhandari. In this post she discusses the challenges of finding...
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What’s That?
At the weekend I met my sister and my niece Bean at a playground we haven’t visited since Bean was tiny. It was lovely to be back in a park playing together. I was wearing a mask and being careful to...
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Dongle or No Dongle?
It’s no secret that I LOVE wheelchairs! I love looking at them, talking about them, tinkering with them, and of course using them. I even wrote love letters to them in Backstage In Biscuit Land and I...
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Park Life
It’s early Friday evening and London’s bathed in gentle sunshine and I’ve just had some spontaneous interactions with girls which were simultaneously blissfully mundane and soul-enrichingly...
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An Unexpected Angle
Venturing out into the city I love after more than a year of shielding has given me loads of opportunities recently to see the world from new angles. Last night I did this in a very literal and...
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Not My Freedom
In 2014 the BBC asked me what my image of freedom was – I chose my wheelchair because it gives me independent mobility and a lot of joy. Right now though, I know much more about what freedom doesn’t...
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